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Follow-up care of rare diseases in odontology: a public health issue

This study aims at providing new data relating to rare diseases with or without bucco-dental component. A national investigation based on a questionnaire has been carried out in France and a clinical study has been completed with the patients consulting the national centre of rare malformations of the face and the buccal cavity, in particular oligodontia.

The results revealed a difficult and complex course of care for all the patients suffering from rare diseases. The oral health quality is not linked to the severity of the bucco-dental component. An unfavorable medico-economic impact has been noted in the treatment of numeric anomalies of teeth, including oligodontia. Proposals have been raised to improve the follow-up care of these patients on the basis of the current evolution of health policy.

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Correspondence to S Toupenay.

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This article is published under license to BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

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Toupenay, S., de la Dure, M., Razanamihaja, N. et al. Follow-up care of rare diseases in odontology: a public health issue. Head Face Med 8, P11 (2012).

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  • Public Health
  • Clinical Study
  • Health Policy
  • Health Issue
  • Oral Health